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I dreaded change. Change is inconvenient, disruptive, and hardwork. It sets me on paths that I do not want to travel. Occasionally, that path includes feeling my way around in the dark. Change forces me to navigate the constantly shifting landscape that often comes with it. In my experience, transformational change happens in life’s hard places. Three of these hard places changed me and shaped my perspective on change itself.
I entered the first of the three hard places in February 2006. During that month, I started over with two children, two months of outstanding mortgage payments, an empty refrigerator, and $120.00. My marriage was over and I joined the community of solo mothers raising children alone with little to no support. This was not what I signed up for. I was raised by two parents in a solid middle class suburb. I at tended excellent schools and had other advantages that most children did not. As a solo mom, I felt ill-equipped to support my children and provide what they needed. I was so focused on supporting my children’s adjustment to our new normal, that I did not realize that I was in a hard place. A hard place is also known as a valley or wilderness experience. My personal and spiritual work is usually done in life’s hard places. Experience has taught me that I will not transition out of the hard place/wilderness/valley if I do not learn the lesson or do the work.
This hard place revealed that I was deeply depressed for nearly my entire 14 year marriage but did not know it. I have had bouts of depression since I was at least 15 years old. At that time, I did not have the language or understanding to tell my parents how I felt. During my late teens and twenties, my depressive episodes were relatively mild. Without a formal diagnosis I learned what would trigger a depressive episode and how to quickly cycle out of it. However, the depression that I uncovered in 2006 was a raging out of control beast that required ongoing medical treatment and medication. Initially, I denied the ferocity of my depression and would not take my antidepressants as prescribed. The consequences were brutal and exacted an extremely high price. Backed into a corner I had a choice: responsibly manage my mental health or continue down a dangerous and destructive path. My children needed me to be mentally and emotionally healthy. So I chose to prioritize my mental health and have never looked back.
Because of my educational and professional credentials, I thought that it would not be difficult to secure a job with a regular paycheck and health insurance. Despite my best efforts, I could not find a job. So I doubled down, expanded my network, and refined my job search. At the end of each successive year, I found myself back where I started the previous January. It took me until January 2013 to realize that I could pause and do the work or spend another year in the wilderness walking around the same circle.
On June 12, 2020, I started another journey through another hard place. That evening my father stood up, suddenly collapsed, and then died shortly after he finished eating dinner with my mother. It was the weekend of my parents’ 62nd wedding anniversary. My family is very, very small. At the time, I and other family members were in or en route to Atlanta for my aunt’s funeral. That weekend my assignment was twofold: support my cousin as she buried her last remaining parent and represent my parents who were too elderly to fly or drive 800 plus miles to Atlanta especially in the midst of the COVID19 pandemic.
I was in Atlanta and spoke to my father several times that day including shortly before he died. How could my father be alive and then dead only a few hours later. Early the following morning, I called a friend from church to inform her about my father’s death. I told her that I could not stay for my aunt’s funeral and was leaving immediately to be with my mother. My friend said that I couldn’t leave because my assignment was incomplete. She was right. I traveled to Atlanta to support my cousin and stand in for my parents. My brother and other family members left Atlanta and rushed home to be with my mother. So I stayed. Somewhere deep inside myself I found the strength to be fully present for my cousin.
My father and aunt died within the first two weeks of June. While my mother is still very much alive, losing two elders in quick succession changed the dynamic of my very small family. With my father’s death we lost our family patriarch and go to person for almost everything. The deaths of my aunt and father accelerated my transition into the role of family elder. My days of only performing tasks assigned by family elders are numbered. As the oldest, I must ensure continuity after my mother transitions. Death and mortality have set me on a well worn path that I do not want to travel. There I will process my own grief, discover who I am without parents, and come to terms with my mortality. Ten years ago I would not have had the perspective and fortitude to follow this path or do the work.
I am still on the journey through my latest hard place. A few years ago, I started thinking about winding down my professional working life. I thought that I could finally run away from my young adult children, buy a Vespa scooter, and spend several months in London. Then two years ago this month I hit a detour that set me on yet another path that I do not want to travel.
On December 3, 2020, I was diagnosed with COVID19. I was released from quarantine a few days before Christmas and slowly resumed my regular schedule. Then in February 2021, new COVID19 symptoms appeared and old ones rebounded. Eventually I was diagnosed with what is now called Long COVID. More than two years later Long COVID is still widely unknown. It is a group of new or returning COVID19 symptoms that can last months and even years. It can cause multisystem organ damage affecting the heart, kidneys, skin, respiratory system, and brain even in people with no prior history of these conditions. Some people with Long COVID develop extremely serious and life threatening medical conditions. Some experience disruptions in regular bodily functions like the menstrual cycle.
My own Long COVID symptoms include cognitive impairment also known as brain fog, extreme fatigue, difficulty breathing, neurologic dysfunction, and inflammation throughout my body. I also suffer from Post-Exertional Malaise also known as PEM. This means that I am easily overexerted. It can take weeks and even months to recover from the slightest overexertion.
By August 2021, I was in such ragged shape that I finally agreed to take short term disability leave. After 11 months on short term disability leave, I was forced to acknowledge that I could no longer perform my job duties because of Long COVID. Since I could not return to work full-time, I was involuntarily separated from employment due to disability. At that time, I lost the comprehensive health insurance and other benefits that I desperately needed to cover my medical care. I had to apply for disability and purchase health insurance on the Market Place which severely limits my access to health care providers.
My own recovery is slow and often lonely. I have endured painful and frustrating setbacks. There are still a few dark days when it feels like I will not survive. This year I completed my sixth decade around the sun. My future is uncertain. I do not know if or how long I will be able to work. So I have temporarily shelved my plan to buy a Vespa scooter and run away to London. My journey through the hard place called Long COVID has been difficult, overwhelming, and sometimes scary. But I am determined to follow the path that I do not want to follow as it unfolds before me.
Do not pity me because I have Long COVID. I am not special. It is just another hard place that has changed my trajectory. We all have hard places. I intend to use my foundational tools to navigate Long COVID. Change is part of life.
The following are my foundational tools for navigating change and transitions:
*This article was presented at the 2022 ABA 16th Annual Labor and Employment Law Conference
Copyright © 2023 Stephanie Hughes
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